Advisor, Lymphoma Patient Advocacy Committee (Volunteer)
As an Advisor on the Lymphoma Patient Advocacy Committee, you’ll contribute to the mission of the committee: To bring together the voices and experiences of lymphoma patients to meaningfully shape lymphoma research at Dana-Farber Cancer Institute, so that the research we pursue reflects what matters most to the people it serves.
The Lymphoma Patient Advocate Committee is a patient advisory board focused on research, including clinical trials and scientific investigation. Members provide insight and feedback that help strengthen the relevance, clarity, accessibility, and patient perspective of lymphoma research activities.
Advisor programs are categorized as either onsite or remote roles. The Lymphoma Patient Advisory Committee is remote as opportunities are typically done via virtual meetings, work document collaborations, and email. Optional onsite visits (such as networking opportunities) may be offered 1-2 times per year and in accordance with Dana-Farber’s visitor policy.
You will have the opportunity to contribute your insights and ideas towards the design and enhancement of various programs, services, policies, and processes specific to your focus area of lymphoma.
Examples:
- Advise on clinical trial and laboratory research priorities from the patient perspective
- Review trial designs and new protocols from a patient perspective
- Provide the patient perspective on plain-language summaries, patient-facing materials, and patient education materials
- Comment on clarity and accessibility of research communications from the patient lens
- Identify barriers to participation and patient burden
- Offer feedback on grant-related materials to help make them clear, patient friendly, and reflective of the patient perspective; this may include contributing to
letters of support when appropriate. - Participate in bimonthly meetings and respond to occasional requests between meetings
By actively participating in these activities, you will have the chance to make a meaningful impact in the health care community.
At Dana-Farber Cancer Institute, we work every day to create an innovative, caring, and inclusive environment where every patient, family, and staff member feels they belong. As relentless as we are in our mission to reduce the burden of cancer for all, we are equally committed to diversifying our faculty, staff, and volunteers. Cancer knows no boundaries and when it comes to hiring the most dedicated and diverse professionals, neither do we. If working in this kind of organization inspires you, we encourage you to apply.